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Involving Patients and Families in the Care Process

Healthcare providers face many diverse challenges when providing care for their patients. New healthcare technologies continue to provide unique ways to address some, but not all of these challenges.  One of the best ways to address them is also one of the most overlooked (and simplistic); involving the patient and their family or loved ones in the care process.  

By involving the patient and their family or loved ones in the care process, healthcare providers are able to see greater rates of treatment success with their patients.  Family members can provide unique information about the patient to clinicians, help interpret information for the patient, and provide emotional support.  Family caregivers can communicate critical medical information to physicians and clinical care teams, keep non-local family members informed and help the patients follow their care instructions and adhere to medications.  However, it is not always easy to get this entire team on board. 

Incorporating these people into the care of the patient can help foster patient-centered care, which has shown to be most effective in caring for patients. According to Anthem, “the Institute for Patient and Family-Centered Care defines four core concepts to guide the development of patient-centered interactions: Dignity and respect, information sharing, participation, and collaboration”.  The use of electronic health apps, such as Spectra, provide a platform from where healthcare providers can incorporate a patient’s loved ones and caregivers into the care plan.  

Spectra provides a launching point from which family members, loved ones, and caregivers can stay up to date on the care a patient is receiving.  Spectra also allows these stakeholders to provide their input into the care process and address their concerns.  Since providers have direct access to this app, they are also in a better place to communicate with the involved parties in order to ensure that the patient is getting the most out of his or her care.  




Tips for easing your loved one's transition into a care facility

The decision to move a loved one into a long-term care facility comes in a twisted series of fate. Perhaps, a slip of the mind or a slip on the ice.  It begins with a series of mishaps and becomes a story of transition. A story of change. One that affects the entire family. A story of obstacles, emotion, devotion and confusion.

This is how the choice to move to long-term care usually unfolds. It just happens. For this reason, family decisions tend to be based on reaction, rather than action. And because we are all so different, as sons, as daughters, as extended family, it can be an emotional, chaotic and explosive time. Because some can contribute more than others due to work, family obligation or just plain human nature, it can be a sensitive time.

We think differently about stuff. Literally. Some of us think we should pitch everything. Some of us cherish every worldly possession. Most of us overlook the wishes of the loved one. In the confusion, we overlook their fears, their vulnerabilities and their right to have a voice.

Many may handle the situation very differently, so it is important to communicate with your loved one beforehand. Below are a few tips from our personal experience that have eased the transition working with individuals transitioning into facilities such as skilled nursing and assisted living:

  • Ask questions like: What do you want from home? How do you want your place to look? Do you want visitors, when? Do you like the activities or would you rather relax? Is there anything new you would like to learn (paint, play an instrument, computers, knit, etc.)?

  • When packing, ask which items they feel strongly about. Whether it is a family heirloom or favorite piece of furniture, set it aside to find a place for it in their new home. The space will be limited, so if possible, offer to keep items that won’t fit. It may make it easier for them to leave it behind.

  • When decorating their home, remember to treat it as such. Family photos and memorabilia will surround them with familiar faces. Setting up a television or radio will allow them to watch their favorite shows or listen to music when it gets quiet.

One of the hardest parts during the transition is being away from family, feeling out of the loop, and sometimes feeling forgotten. Remind family of your loved one’s birthday or favorite holidays, and have them send cards and well wishes. The outpouring of love and support will show them they are surrounded by people who care about them and care for them.

Each family member plays a different role in the transition. Some are the great caregivers and some are great company. When it’s company, your loved one may want them to feel at home too. Have a small refrigerator tucked away so they can offer you food or drink. Have a couch or other furniture ready for visitors. Your loved one may feel good to know that everyone is comfortable, especially if there is a jar of candy on the nightstand.

If your family is faced with transitioning your own loved one into a long-term facility, involve them in the planning, don't take away their voice, listen and always remember that everyone adjusts differently.

*All facilities have different requirements for bringing in personal belongings from an individuals home so make sure to check with the staff at the facility prior to bringing larger items.



Holiday gifts for the caregiver in your life.

With less than a week left until Christmas, we’ve pulled together a list of our favorite gift ideas for the caregivers in your life. Amidst all of the holiday hustle and bustle, we often forget what life would be like without those we rely upon most.

House Cleaning - Household maintenance often slips for caregivers who have a heavy load of responsibilities. Schedule a post-holiday house cleaning by a local cleaning company or volunteer your time to help get them have a fresh start for the new year.

Massage - Being a caregiver to someone else is taxing on both the body and the mind. Give the gift of a massage this holiday season to promote stress reduction and relaxation.

Gift box - It’s always fun putting together an array of uniquely themed gift boxes filled with hand selected items. A personal touch makes all the difference and you can create this gift specifically to the preferences of your caregiver.

Flowers - A beautiful bouquet is always a welcomed gift for a caregiver. Call your favorite florist or order online for in-home delivery.

Card - You can never go wrong expressing your appreciation for a caregiver with a heartfelt card. Cards with photo personalization also make a wonderful holiday greeting for friends and loved ones.

The holiday season is the perfect opportunity to show the caregivers in your life how much you respect and appreciate everything they do.



What is a caregiver?

The dictionary defines “caregiver” as a family member or paid helper who regularly looks after a child or a sick, elderly, or disabled person.

But is that really it?

At Spectra, we know that it’s much more. We believe that a caregiver is anyone who willingly sacrifices time and energy to enhance or protect the wellbeing of another.

A caregiver is a husband supporting his pregnant wife. A caregiver is a daughter helping her elderly mother adjust to her new nursing home. A caregiver is the friend who is always willing to bring you to therapy and the therapist who works with you every week.

You may find yourself in a caregiver role abruptly, or you may have time to plan ahead. It may include quick tasks like picking up mail and calling in a prescription, or it may be something that takes up hours and hour of time. It may be for just one day or it might be for several years.

Everyone plays the role of a caregiver at some point in their lives. Participation at any point in the spectrum of care for others, no matter how small, is just as important as the next.



Who cares?

More people are caregivers than you might think. Spectra's goal is to provide easy to use tools to help make their lives easier and give them some time back in their day.